Luke's fever responded to Tylenol, but he's still not feeling 100%. o2 sats are going up and down some, and his heart rate continues to be a bit elevated. Giving a breathing treatment with the cap one was a nightmare. We sure appreciate your continued prayers. We are resting in God's mercy and infinite grace. I just wish I knew what his plan is for that little boy this summer...
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Well, looks like Luke is getting sick. Sneezing, runny nose, and a fever. He's not tolerating his cap well awake or asleep. I don't understand why this is happening, and I don't have high hopes for making the sleep study on Saturday. Delaying the sleep study means we're delaying decanulation indefinitely. We need God to intervene or provide comfort in our disappointment.
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