Tuesday

Approx 4:30 pm
Luke slept with his cap on for his nap for about 15 minutes. His sats and heart rate didn't really change for when he slept with the cap off, which is good. But his breathing was still very noisy and labored, which is concerning. Possible and probable that he's experiencing some swelling in his airway, making it more difficult to breathe with the cap on. Hoping tomorrow is better because he can't pass a sleep study that way. Relying on God, who is the only one who can get Luke to sleep comfortably with the cap on at this point.
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Approx 9:30 am
Neither Luke nor I really slept well last night, but we got through it. Got in another breathing treatment with the mask and the cap while he was playing with the iPad. Luke's wearing his cap this morning, although he's been taking it off quite a bit. I really don't care if Luke has the iPad and I have to watch Elmo's World all day if it means success with the cap this week. Some other parent tell me that's okay. Anxious to see how he does at nap time. Saturday's Sleep Study is coming so quickly.