Home now, but worried about Luke's breathing. It seems like he's working way too hard...maybe he just needs to destress and get used to being home. I hope that's all it is.
We called one of the docs on the PICU. He said that it's expected that Luke might have a tough time adjusting back to his home vent and less oxygen. Luke will also need time to fully recover and return to his "baseline" o2 sats and HR. He suggested that we adjust some settings on Luke's vent, and give him all the oxygen he needs. I guess I just hoped that as soon as we got Luke in his own bed he would be completely back to normal. I guess that's not the case. I think we're going to be okay though.
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