Wednesday

Luke had a great day. Weird that even babies in the ICU sometimes just need some Tylenol for teething. Poor guy. Resting now. I'm about to head out. Still on for Monday as the big day!

Tuesday

Luke is on the surgery schedule for Monday! Please pray that we can keep this baby healthy and infection-free until then! PS - he sat up and played for a solid 15 minutes this morning without getting fussy! Love it. And he's getting a PIC line this afternoon.

Thursday

... is excited to see her little boys beautiful eyes and smile today. And has family coming in!

Monday

Luke is movin' and groovin' today. He's having a really great day. The docs are changing lots of little stuff (meds, feeds, vent settings, etc) because he's doing so well. They haven't decided if they will do another heart cath, but they are going to postpone surgery for as long as Luke can tollerate it (3-6 weeks?). Luke won't be able to go home until after surgery, so we're here for the long haul.

Sunday & Monday

Please pray for Luke's kidneys. They haven't been able to rid his blood of the toxins like they need to. We're told that sometimes this happens with kids on the medications Luke has been on. If his numbers aren't better tomorrow, we may be facing dialysis again, only a type more invasive than last time. We need your prayers--it feels crappy to get hit with this so soon.

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Turns out that Luke's doc isn't quite so worried about his kidneys as we thought. We still definitely appreciate your prayers, but it doesn't look like dialysis is on the table at this point. We'll continue to watch his numbers and pray that his kidneys catch up to where they're supposed to be. We're looking at surgery hopefully next week, and maybe another heart cath between now and then.

Saturday

Luke pretty well kicked his infection. Please pray that he can stay infection free until surgery in 1-3 weeks! David and I are settling in for the long hall and praying it won't be as long as the first time. Luke's still sedated and sleeping, though he opens his eyes a tiny slit every once in awhile. I miss holding my little baby.

Friday

Luke even better this morning. They've weaned his oxygen down to 50% (from 100) and is using almost no Nitric Oxide. They've also weaned way down on his blood pressure meds. His sats are low 70%s and HR is 110s. His chest x-ray looked beautiful this morning. He's so much better, that they are going to try allowing him to wake up today. Just a little while longer before I see those baby browns! It's a good day.